Below we’ve listed a few different programs and organizations related to Morquio. If you have any suggestions to add please send us a message by contacting us now! We are updating this list often.
Contents
Community-Created Resources
Allison’s A-List
Allison Scott’s best-of “life hacks” for living independently with Morquio – small adjustments I have made in my home to shape a space that fits me and makes daily life more simple. I share them here in the hopes that some of these ideas will be helpful to others as well.
On Finding Love: A Miniseries
A miniseries on dating and relationships while living with Morquio by Allison Scott. The series shares the love stories of people living with Morquio who found their person and the journey that brought them together, and can help you think through the complicated questions you may be having about your own journey!
Community Perspectives on Treatment Options
Our Family’s Experience with Bone Marrow Transplant Treatment
One family shares their journey navigating treatment options for their son, and ultimately their experience pursuing hematopoietic stem cell transplant (HSCT).
Organizational Resources
Little People of America
LPA is dedicated to improving the quality of life for people with dwarfism throughout their lives while celebrating with great pride Little People’s contribution to social diversity. LPA strives to bring solutions and global awareness to the prominent issues affecting individuals of short stature and their families.
Dwarf Athletic Association of America (DAAA)
The Dwarf Athletic Association of America is committed to providing athletic competition, guidance, support, and information to people of short stature and to their families. You are welcome to contact us for more information about our organization, our annual DAAA National Games and the quadrennial World Dwarf Games. Every level of ability and skill is welcomed and supported.
DAAA is dedicated to serving the estimated quarter million people in the United States of America who have any of the more than 200 forms of dwarfism as a result of skeletal dysplasia or related causes. Our mission is to encourage all people with dwarfism to participate in sports
National MPS Society
The National MPS Society provides support to families and promotes research initiatives that affect the following diseases:
