Hello Morquio community! My 8yo son just completed hematopoietic stem cell transplant* (HSCT) to resolve his enzyme deficiency that was brought on by MPS IVA, Morquio Syndrome. This treatment for Morquio was the 2nd treatment of Read more…
We seek to promote connection and education on the Morquio syndrome, as well as specific issues the community wishes to address. Through meeting one another, developing friendships, and engaging with the medical community, it is our hope that we can draw strength in our union and develop a voice to improve our social as well as physical well being.
What do we offer?
The Morquio Community can serve many different purposes, depending on what you are looking for. We work to circulate information and provide educational opportunities, but more simply, we also seek to make connections and grow community.
We have a listserv and community meetings to help folks connect and share and build relationships.
Members of this community include top doctors who offer updates on research and best practices.
Take comfort knowing that you have a diverse group of people with similar experiences supporting you.
Subscribe to our Newsletter and Listserv
Community Updates and Resources
Events and resources created and curated for our community, by our community.
Get in Touch
We want to hear from you!
Reach us by traditional Mail
1249 Wilhelmina Rise, Honolulu, HI, 96816
Shoot us an Email