Our Mission

We seek to promote connection and education on the Morquio syndrome, as well as specific issues the community wishes to address. Through meeting one another, developing friendships, and engaging with the medical community, it is our hope that we can draw strength in our union and develop a voice to improve our social as well as physical well being.

What do we offer?

The Morquio Community can serve many different purposes, depending on what you are looking for. We work to circulate information and provide educational opportunities, but more simply, we also seek to make connections and grow community.

Community

We have a listserv and community meetings to help folks connect and share and build relationships.

Education

Members of this community include top doctors who offer updates on research and best practices.

Support

Take comfort knowing that you have a diverse group of people with similar experiences supporting you.

Subscribe to our Newsletter and Listserv

Community Updates and Resources

Events and resources created and curated for our community, by our community.

Get in Touch

We want to hear from you!

Reach us by traditional Mail

1249 Wilhelmina Rise, Honolulu, HI, 96816

Shoot us an Email

Maria McClellan
morquiocommunity@gmail.com

This community is maintained by all involved; but there is a small team of people working behind the scenes to grease the wheels and keep things running smoothly.
Maria and her care pup Shadow pose with a sign in support of farm workers.

Maria McClellan

Founder & President
Jocelyn Wong poses for headshot.

Jocelyn Wong

Secretary
Gemma Yamamoto poses, showing off a bowl she made from clay.

Gemma Yamamoto

Treasurer
Dr. Tomatsu poses for a headshot.

Dr. Shunji Tomatsu

Medical Advisor
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