An event poster inviting all to a meeting with Allstripes, hosted by the Morquio Community.

Past Event: October 23rd, 2021 at 3:00pm ET/ 12:noon PT

Join us and learn more about AllStripes! The Morquio Community is hosting two representatives from AllStripes to answer all your questions, from what is AllStripes, to how do I sign up, to how the platform might be useful to you. Guests: JP De Souza and Rich Elles, of AllStripes Saturday, October 23rd, 2021 at 3:00pm ET/ 12:noon PT on Google Meet. Please register by October 22nd, 2021 here: http://bit.ly/3D4WHP1 The login information for the meeting Read more…

Flyer outlining event info. Can also be read in body of post.

Past Event: August 14, 2021 @ 4p EDT

Our next Morquio Community meeting will be all about Orthopedics! Bring your questions about the spine, hips, legs, and any bone related concern. Speakers: Dr. William Mackenzie and Dr. Stuart Mackenzie Saturday, August 14th, 2021 at 4:00pm EDT. Please submit and register on the link below prior to August 12th, 2021. https://forms.gle/438Wg3qcfJw6ftkJ7 The login information for the meeting will be sent out after you complete this form.  Look forward to seeing you!

Event Flyer

Past Event: March 13, 2021 @ 4p EST

On March 13, 2021 at 4pm EST (20:00 GMT) the Morquio Community will host an event featuring three guest speakers: Andrew John will share his experience with his daughter who is doing a bone marrow transplant, or a hematopoietic stem cell transplantation (HSCT). Jake Little who has Morquio will speak about his personal physical training experience. Dr. Shunji Tomatsu (researcher for over 25 years on Morquio) will speak about the current COVID19 pandemic and his Read more…

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